Webinar: People Living with Dementia Share their Wisdom
July 13, 2022 - August 24, 2022
Join Myrna Norman as she hosts and moderates a three-part webinar series – July 13, August 10 and August 24 – where she and others share their insights, experiences and wisdom about living well with dementia.
People living with dementia have tremendous wisdom and knowledge to share. In this three-part-webinar series, supported by the Murray Alzheimer Research and Education Program (MAREP), panelists will discuss their experience receiving their diagnosis, as well as the stigma and misconceptions around dementia. MAREP is a collaborative research and education program that aims to enhance well-being for individuals impacted by dementia, including people living with dementia, care partners, healthcare providers and community members.
This webinar series is free and open to the public. Join one or all three. Registration is required.
These webinars are a great opportunity for:
- people living with dementia to connect with a strong, supportive community;
- care partners to hear first-hand experiences and insights from those living with dementia;
- the general public to learn how to live well with dementia and ways to provide support.
Attendees are encouraged to ask questions, reconsider their assumptions and learn something new.
This webinar has already taken place. If you would like to watch the recording, click here.
Bill was diagnosed with early-onset Alzheimer’s disease in 2000 at the age of 59. He is an advocate for the Alzheimer Societies of Thunder Bay, Ontario and Canada, and participates in university-led studies and projects.
Debbie was diagnosed with Young Onset Alzheimer’s at the age of 58 and is a dementia advocate and speaker locally, nationally and internationally. Her special interests in advocacy include: educating everyone about the ability to live well at various stages, deinstitutionalization for those with dementia, medical assistance in death (MAID) and human rights.
In addition to being actively involved in a various research projects, she also sits on a number of committees around the globe.
Donna’s own journey with Alzheimer’s disease ignited a passion for combating stigma and educating the public. She first noticed signs of memory loss in 2014, following hip replacement surgery. An active dementia advocate, she supports the Alzheimer Society of British Columbia and uses her program facilitation experience to educate those who respond with: you don’t look like you have Alzheimer’s disease, when she shares her diagnosis. She lives in British Columbia and continues to live an active lifestyle.
A former CBC Television Director, Len worked on programs including The National, Sunday Report, Saturday Report and The Nature of Things as well as programming for 9/11 and Lady Diana’s fatal car accident. While at the CBC, he was president of two different local unions and held table officer positions for approximately thirty years. He later became heavily involved in the Waterloo Regional Labour Council, the Canada Labour Congress and the Ontario Federation of Labour and was one of the first and busiest Occasional (Peer) program facilitators in Ontario.
Stayed tuned for more panelist biographies!
Christine describes herself as bright, fun and adventurous. Diagnosed with vascular dementia and cerebrovascular disease at 56, she knows first-hand how people’s abilities are stripped instead of embraced
Recognizing that advocacy is the only way to make change happen, she is actively involved in many initiatives, including the Dementia Alliance International.
Diagnosed with Alzheimer’s disease in 2017, Clara loves to socialize and is actively involved with the Alzheimer Society. Both her mother and three sisters also had Alzheimer’s disease.
She currently lives in Thunder Bay, Ontario with her husband Bill and they have two daughters and two grandsons.
Debbie was diagnosed with Alzheimer’s in June 2021. Currently living in beautiful Chilliwack, BC by herself, she has support from her daughter Jolene and partner Tamara. She has three grandchildren: Carson, Cole and Caylin. Debbie stays busy by filling her days with aquafit, walking, visiting friends and gardening on her balcony.
Jerry is 85 years of age and has been married for 63 years. He and his wife have one daughter and three grandsons. Dementia runs in his family; his mother, sister (both deceased) and brother have it. Jerry was diagnosed with mild cognitive impairment in 2022.
He participates in research studies with universities across Canada and is on a dementia advisory board with Myrna.
In 2007, John left his career as an estate administrator with a national bank at age 48 because he experienced cognitive difficulties due to frontotemporal dementia. He has found recreation therapy to be the best way to stay active and engaged with friends. John is on the board of YouQuest, Calgary’s first wellness community for people with young-onset dementia. YouQuest uses a recreation therapy model to support younger people with dementia, and embodies John’s personal motto, to ‘have a good day, every day.’
Stayed tuned for more panelist biographies!
Brenda was diagnosed with dementia in 2000, at the age of 53. An active advocate for people living with dementia. She is also the founder of the By Us For Us (BUFU) guides, a series of booklets for people with dementia by people living with dementia. A public speaker at numerous events locally, provincially and nationally, co-researcher on a number of projects, served on previous committees and received the Queen Elizabeth II Diamond Jubilee Medal.
Paul is 69 years of age and was diagnosed with vascular dementia after suffering a massive stroke 12 years ago. He lives well and uses technology to help himself.
An advocate for People living with Dementia (PLWD). She is a wife to Patrick, the mother of two grown sons and a sweet granddaughter, 7 year old Arianna. She writes stories and poems for Dementia Alliance International (DAI) and Dementia Connections.
She is honoured to participate as an adviser to the Canadian Dementia Learning and Resource Network