Webinar: Care partners share their wisdom

October 19, 2022 - December 14, 2022

Being a care partner is a unique experience and can often mean taking on new and multiple roles. While being a care partner can be rewarding, at times it can also feel overwhelming and cause added stress. 

In this three-part webinar series – October 19, November 23, December 14 – care partners will share the personal experiences, challenges, and strategies they learned while supporting people with dementia. 

This webinar series is co-hosted and moderated by Wayne Hykaway, who is a care partner for his wife, and Myrna Norman, who is living with dementia and actively involved in raising awareness about dementia and advocacy initiatives. 

This series is supported by the Murray Alzheimer Research and Education Program (MAREP), a collaborative research and education program that aims to enhance well-being of individuals impacted by dementia, including people living with dementia, care partners, healthcare providers and community members.

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We understand these can be difficult conversations. If you or a care partner is in need of assistance, please click here for a list of supportive resources.


Webinar Details


To learn more about each of the panelists, see their bio’s below.
Catherine Ann

Catherine was raised in Harbour Main, NL – spent some time in Ottawa, Sioux Lookout and Europe before returning to NL to care for her Mom. Catherine cared for her Mother, Isabel Kelly, throughout her ten years living with dementia. During that time Catherine and Wayne created two beautiful humans, Xavier and Sibéal. Catherine was able to spend six of those years fully at home with her Mother and children. Isabel died in October 2018.

Inspired by her mother, Catherine started “Got the dementia”, a care planning business. Catherine is a restorative justice practitioner, an End of Life doula and a trained dementia care practitioner. Catherine is the Lead Facilitator with Community Justice Connect, a new pilot program with the NL Human Rights Commission. Catherine serves as Past President to the St. Leonard’s Society of Canada.


Cindy G

Cindy is a care partner who has been supporting her husband, Lester, since he was diagnosed with Alzheimer’s disease in 2019. Cindy lives in Burnaby, British Columbia. Cindy and Lester were invited to be honorees for the 2022 Alzheimer Society Walk for New Westminster/Burnaby. They are both active in their community’s Friendly Dementia Cafe; Seniors Memory Club; and Caregiver Luncheons. Cindy loves walking outside in nature, and finds joy and calm in reading children’s picture books from the library.


Karen B

Karen is a care partner supporting her father in providing care at home for her mother, who is living with early onset Alzheimer’s in Orangeville, Ontario. Karen lost an uncle to dementia almost 2 years ago and has an aunt who is currently living with it as well. Her mom is loved by her 4 grandkids with two at university and two at home. Her mom has been living with Alzheimer’s for 10 years and is doing well. Exercise and engagement have really helped.


Lisa P

Lisa is a family care partner whose father was living with dementia. She is an advocate for improved supports and services for people impacted by dementia across Canada. Lisa lives in Calgary, Alberta.


Patty W
A headshot photo of Patty Whitelock

A former elementary school teacher, wife, mother, grandmother, and special Auntie. I like to walk and be outdoors in the sunshine. I enjoy spending time with family and friends. My husband and I started down the Alzheimer’s path by participating in the informative program – “Shaping the Journey” – where we learned about the different types, phases and symptoms of dementia. We attended many different support groups for my husband who lives with dementia and for myself as his caregiver. It was important for us to learn as much as possible about this disease.  I learned that “if you don’t laugh, then you cry”, was a way to cope with the many trials we encountered. Educating others became one of our goals. Since our initial shock of his diagnosis we have learned that everyone living with dementia is different. They may exhibit similar symptoms, yet they may be slightly different and occur at different stages. My current mantra is “one day at a time.”

Reminder, if you have registered for this webinar, please add it to your calendar!
Brent H

Until 10 months ago, Brent was the sole primary caregiver for Sally, his wife/partner & best friend who has had Alzheimer’s for 8 years. Sally went into LTC 10 months ago & 5 months ago was committed by warrant to a special Psychiatric treatment facility dedicated to the treatment of aggressiveness/violence in Alzheimer’s patients. Brent considers himself fortunate to have 2 brothers who are doctors & an OT daughter who are very familiar with Alzheimer’s. His family of 4 adult “children” is very close & supportive. Brent spends much of his time advocating & visiting Sally. He is creative & a prolific writer. He contributes to a number of support groups & serves as a Moderator/Advisor on one of them. Brent has focused his creativity & time in the past years concentrating on supporting other caregivers. He has shared an ongoing log, written Posts, contributed to authors on Dementia, written poetry about Alzheimer’s, & collaborated in creating original songs about loving/losing Sally & praising those who care for her in institutional environments. Brent is proud to inform people that he has 10 grandchildren with the latest two little girls being adopted from Japan & India. Finally, Brent wants everyone to know that he places a high priority on maintaining perspective & a sense of humor no matter how difficult the challenges.


Christine P

Christine cared for her husband Brian, who was diagnosed with dementia in September 2021. He passed away in April 2022, the journey was fast and difficult. I became involved in the Monday evening caregivers Conversation Cafe. I am now about to host a Conversation Cafe in my section of the city. One of my great joys and has helped my healing are my three busy grandsons.


Daniel G

Daniel Gaetano currently resides in Calgary, Alberta, Canada and has had a career as Vice-President of Finance at a non-for-profit beverage recycling organization. After his wife, Janet, was diagnosed with early onset dementia in 2010, Daniel retired early to become a full-time care partner to her until December of 2021. Daniel has since become an advocate for people living with dementia. He has spoken for Alzheimer’s Society Calgary, became a member of Dementia Advocacy Canada and contributes to the Resident & Family Council at Alberta Health Services for the PRIHS IV “Improving Acute Care for Long-Term Care Residents”.  He also assists in various projects for Dementia Network Calgary.


Lita R

Lita was a caregiver for many years. Her husband was finally diagnosed over three years ago with vascular dementia, which she believes was due to years of playing football. He was finally placed in long-term care during the COVID-19 pandemic. Lita is now exploring different avenues of giving back.

 


Stephanie R

Full bio coming soon!

Reminder, if you have registered for this webinar, please add it to your calendar!
Ian Whitmoor

Ian is a care partner supporting his wife Nancy, who was diagnosed with dementia in 2019. Nancy lives in Calgary and loves all animals, especially her 15 year old Roxie, a bichon shitzu.


Jody P

Jody is an Essential Caregiver to his wife Joyce who suffers from late stage Alzheimer’s disease. Joyce was diagnosed with early onset Alzheimer’s in 2014. We participated in the Biogen drug study for 4 1/2 years until it was cancelled. We were able to support Joyce at home until February 2021 when she was admitted to the Bancroft LTC facility. We live in a rural setting which has limited support for caregivers. Jody’s mother resides in an assisted living facility in Whitby, Ontario.


Kimiye K

Kimiye and her 9 year-old daughter have been living with and caring for her parents in Burnaby BC since 2019. It became clear that her father, 86 with Alzheimer’s Dementia, and mother, 88 with mild cognitive impairment were no longer able to manage their self-care and household maintenance. Kimiye’s spouse and stepchildren live in Grays Harbor, Washington and come to visit whenever they can.


Linda G

Linda’s husband was diagnosed with MCI in 2006, which later morphed into Alzheimer’s disease. During this time, she became an active advocate in speaking out for those suffering from dementia.

Linda has spoken at Ontario Government Round Tables and has served on the Geriatric Advisory Group at Sunnybrook Hospital. She is a member of CCNA’s Engagement of People with Lived Experience in Dementia (EPLED). She also serves on the CIHR Institute of Aging Older Adult Regional Council.

Linda’s research interests include, but not limited to, participation in meaningful discussion regarding the plight of seniors with dementia who are “housed” in retirement and long-term care homes. Linda has also written and published six children’s books about child abuse which won the Mayor’s Award. Linda currently resides in Toronto.


Marilyn C

Marilyn was a caregiver for her husband, who was diagnosed in 2017 with Posterior Cortical Atrophy (PCA), a rare form of Alzheimer’s.  It was suspected that he possibly might have had Lewy Bodies Dementia, as well.  He passed away in May of 2022 but Marilyn still supports participants of the PCA forums online. Marilyn is deaf, but received a cochlear implant in Dec of 2020, so is able to hear without lipreading, although she still likes to “cheat” with watching lips!  She is now able to talk on the phone, although some voices are still difficult.

Marilyn lives in a seniors’ independent living complex, with a community of 300 residents and likes to be involved with activities, where she can meet other seniors and participate in group conversations. Marilyn likes to travel, loves animals and nature, but since hearing, she has been meeting people who she met online. She was never really a “people” person, but her husband was, very much so.  Now she can understand the charm he got from socializing!


Vicky W

Vicky was the primary care partner for her husband who was diagnosed with Frontotemporal Dementia in 2010. He lived at home for 4 years and in long term care for 4 years. He passed away 2018 at the age of 56.  Vicky is now a facilitator for the Lived Experience Network South East Ontario. She also participates in many advisory groups to help others navigating similar situations.  She loves to work with clay and paint.

Reminder, if you have registered for this webinar, please add it to your calendar!


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Supportive Resources


We understand these can be difficult conversations. If you or a family member is in need of assistance, please refer to the supportive resources below.

Advanced Care Planning