By Us For Us Guides

The By Us For Us guides are a series of guides created by a group of talented and passionate people living with dementia and care partners. The guides are designed to provide people living with dementia and their care partners the necessary tools to enhance their well-being and manage daily challenges.

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The By Us For Us guides are a series of guides created by a group of talented and passionate people living with dementia and care partners. The guides are designed to provide people living with dementia and their care partners the necessary tools to enhance their well-being and manage daily challenges. What makes these guides unique is that they are created BY people living with dementia and care partners, FOR people living with dementia and care partners.

The guides are available online and in print, please see the download or purchase link below.


Are you an organization working with people living with dementia and care partners that would benefit from the By Us For Us guides? Bulk orders and partnership opportunities are available to help you serve your clients.

The By Us For Us guides project views knowledge as power, and views the guides as an important means of providing important information to others about how to live with dementia. If the cost of hard copies is unaffordable, please contact the RIA for accommodation / assistance.

Date created: 2007-2021

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By Us For Us Guides
Bundle (All 15 Titles) 50.00
Receive one copy of all 15 titles in the By Us For Us guide series. The cost of the guides is $50.00 CAD plus shipping.
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Memory Workout 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It provides examples of brain games and exercises. It encourages people living with dementia to develop and maintain regular 'workouts' for the brain to support cognition while engaging in enjoyable activities. The cost of this guide is $5.00 CAD plus shipping.
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Managing Triggers 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It outlines the main stressors experienced by people living with dementia and offers solutions to manage and alleviate them. It focuses on managing stress associated with social situations, verbal communication, changes of abilities and memory, and managing the environment and negative emotions. The cost of this guide is $5.00 CAD plus shipping.
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Enhancing Communication 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It outlines communication challenges experienced by people living with dementia when communicating with family and friends, health care professionals, and in social situations. It provides practical solutions and a wide range of communication strategies. The cost of this guide is $5.00 CAD plus shipping.
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Enhancing Wellness 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It focuses on ways that people living with dementia can enhance physical, psychological, emotional, social and spiritual well-being to live life to the fullest. It provides helpful tips for eating well, being physically active, staying connected with others, and living in peace. The cost of this guide is $5.00 CAD plus shipping.
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Tips and Strategies 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It offers advice on creating a 'new normal' in daily life when living with dementia. It provides memory “workout” ideas, tips for those in the workforce, and strategies to develop daily routines that will work for individuals. The cost of this guide is $5.00 CAD plus shipping.
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Living and Celebrating Life Through Leisure 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It offers suggestions for people living with dementia to discover meaningful experiences through activities and relationships. Meaningful leisure can include a wide range of activities, and is important for well-being. The cost of this guide is $5.00 CAD plus shipping.
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Young Onset Dementia 5.00
This guide is part of the people living with dementia series - it is written by and for people living with dementia. It offers tips and strategies for living well with young onset dementia. It provides suggestions on adapting to the cognitive and physical changes associated with young onset dementia, as well as managing and coping with emotions, independence, family, transportation, and finance. The cost of this guide is $5.00 CAD plus shipping.
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Before/Early Diagnosis 5.00
This guide is part of the care partner series - it is written by and for care partners. It offers help and reassurance for those who are concerned about changes that their family member or friend may be experiencing. It provides knowledge about a dementia diagnosis, assessment and testing. The cost of this guide is $5.00 CAD plus shipping.
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Role, Health, and Well-Being 5.00
This guide is part of the care partner series - it is written by and for care partners. It offers many tips and strategies to understand, support and maintain the health and well-being of care partners. Positive stories are also shared to encourage all partners in care on their journey. The cost of this guide is $5.00 CAD plus shipping.
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Living and Transforming with Loss and Grief 5.00
This guide is part of the partnership series - it is written both people living with dementia and care partners, for people living with dementia and care partners. It explores the experiences of loss and grief that come with the dementia for care partners as well as people living with dementia. It provides useful tips and strategies for acknowledging, experiencing and transforming these experiences, and supporting readers through loss and grief to a place of acceptance, peace and hope. The cost of this guide is $5.00 CAD plus shipping.
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Food & Mealtime 5.00
This guide is part of the partnership series - it is written both people living with dementia and care partners, for people living with dementia and care partners. It presents strategies for adapting to the many changes associated with food, mealtimes and living with dementia. Whether shopping for groceries, preparing meals, or going to a restaurant to eat, it is important to acknowledge and accept changes around food and mealtimes for both people living with dementia and care partners. The cost of this guide is $5.00 CAD plus shipping.
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Living Safely 5.00
This guide is part of the partnership series - it is written both people living with dementia and care partners, for people living with dementia and care partners. It offers many safety tips and strategies related to driving, living at home, being out in the community, personal identification and use of technology, health and medication, physical safety, and financial safety. It also provides information and resources related to safety and dignity. The cost of this guide is $5.00 CAD plus shipping.
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Safety When Out And About 5.00
This guide is part of the partnership series - it is written both people living with dementia and care partners, for people living with dementia and care partners. It offers tips and strategies for staying safe in the community, including communication strategies and planning ahead. Memory changes and challenges with solving problems can increase the risk of getting lost, or make finding your way more difficult for people living with dementia. This guide was developed in partnership with the Alzheimer Society of Ontario and Finding Your Way™. The cost of this guide is $5.00 CAD plus shipping.
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Isolation and Enhancing Social Connections 5.00
This guide is part of the partnership series - it is written by both people living with dementia and care partners, for people living with dementia and care partners. This guide provides practical strategies to enhance social connections and a sense of belonging. Social isolation and loneliness can be especially challenging for people living with dementia and care partners, but there are ways to help. The cost of this guide is $5.00 CAD plus shipping.
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Support Matters 5.00
This guide is part of the care partner series - it is written by and for care partners. It examines factors that are important in the lives of young carers (children, youth, and young adults) who experience a shift in their family roles as a result of a family member’s exceptional needs or their unique family situation. It suggests ways to manage and cope with responsibilities, and provides advice and guidance to adults and organizations on ways they can better support young carers in their community. The cost of this guide is $5.00 CAD plus shipping.
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Authorship

The guides were produced by the Murray Alzheimer Research and Education Program (MAREP). Many individuals and organizations contributed content. Please see the Acknowledgements section within each guide.

This guide was created to support team members in assessing senior living environments and discussing opportunities to create a sense of comfort and belonging for people living with dementia, particularly those who repeatedly attempt to exit. This guide can be used in all living environments, whether people living with dementia are living separately or alongside people without dementia.

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I'm Still Here is a powerful research-based play that captures important aspects of, and deepens understanding about, the dementia journey from the perspective of persons living with dementia and their family partners in care. A DVD copy of the performance and an accompanying Learning Guide are available to order.

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A Changing Melody is not like other conferences, it's a forum designed by and for persons with early-stage dementia and their family partners in care. The toolkit helps individuals, groups, and/or organizations plan and implement their own forums. DVDs are available featuring powerful presentations from past forums.

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The Memory Clinic is a multidisciplinary approach for early diagnosis, treatment and support of changes associated with memory loss.

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LIVING the Dementia Journey (LDJ) is an award-winning, evidence-informed training program for those who support people living with dementia. Participants gain awareness and understanding that changes not only the way they view dementia, but the way they support people living with it.

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The latest episode of the Dementia Dialogue Podcast featured RIA’s Murray Alzheimer Research and Education Program (MAREP), Brenda Hounman, a dementia advocate, person living with dementia and By Us For Us Guide founder, and Sherry Dupuis, RIA research scientist.

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